Subject: about aaron
Date:28 April 2001
im just starting out with all of this, im taking my son in for an asessment
as soon as i can.
he's 6 years old. he is so charming. thats doctor jekyll...then there is mr
hyde...wow...what a temper.
when things dont go his way he gets beyond angry.
throws things..hits walls..swears. he has never seen any of us get angry
he also has echolalia. does anyone else have a child who does this?
he's afraid of the strangest things...the credits after a movie terrify him.
he has a really major case of bug phobia....to the point where he will sleep
with out blankets and no pjs on a cold night if theres even the slightest
chance there's a bug lurking somewhere. and this is after he's seen us look
also...he has to watch us make his food or he wont eat it...heaven knows why.
if things to go crash and bang he wont play with it. and even though we
restrict his nintendo time.. thats about all he talks about.
first grade was a night mare..he tries to get along with other children but
it falls apart and he usually ends up fighting with them because things didnt
go like he thought they should.
he has a very hard time pay attention. reading isnt going well.
because school was really difficult i decided to pull him out and homeschool
at least he gets more one on one attention...and he doesnt get harrassed by
he's terrified of being alone..even if im in the bathroom he;'s afraid.
anything above normal sound levels makes him shake and cover his ears.
when he gets to excited he tenses up and starts making a squealing
noise...like it to much to handle and it takes time to unwind him.
oh man..washing his hair...that sends him out the window. he's scared to
death..it doesnt matter if we do it slowly and carefully or if we give him a
wash cloth to put over his eyes. whew...what a day this all makes.
does this sound familiar to anyone out there? i would really appreciate your
input...thanks all and lots of hugs and prayers your way'
Subject: Re: about aaron
Date :20 April 2001
i did have gestational diabetes during the pregnancy.
aaron is my last baby..i had him when i was 40. my other children are 21 and
my other children adore him and they get along well for the most part.
except when things dont go his way.
every seemed to happen at about 2.
the only other really strange thing is...he NEVER used phrases like..me want
a ...me likes...me is...or aaron is ..wants etc. its always been i want
...i like ..i am. it was as though is language skipped over a phase other
kids go through.
thats all i can think of for now.
have a great day
From: pearl Davis <firstname.lastname@example.org>
Subject: when medicine doesn't seem to help!!!
Date: 19 April 2001
Hello, my name is Karen i have a 7-year old diagnosed with autism at age
3. Since then life has been a batlle all by itself . My son is very
lovable likes to be hugged and kiss interacts with people his become
fimiliar with. He's very independent and has learning skills. He's
currently in a special school which doesn't seem so far to know how to
deal with hyperactivity which has become a major problem for him. I've
had countless people tell me how much potential he has because he's no
verbal but very receptive and borders more on PPD then Autism (if that
makes a difference). I am at my wits end I've had numerous sleepless
night trying to figure out what to do next. He's currently on
medication Adderall & Clonidine which a this point is no longer helping
and theis always seems to be my end result with medication. My son has
never done well with medication it always seems he's allergic to
something in them in the long run. They just don't seem to help with
the hyperactivity afterwhile. I'm sick of trying him on different
medicines only to have the not be effective after a long period of
time. I''m now in the process of taking him off the meds and trying a
strict diet. The diet he's on now which is not by choice because he so
picky consist of cracker, orange juice, chicken, mini-wheats, bread,
strawberries, grapes oh! and let not forget McDonalds french fries.
This is a cry for help from someone out there. I believe in my son I
know I can help him through this I've called his doctor several time
notifying him of how the medicine seems not to be as effective as
before. I can't seem to get much feedback from him and it's been two
weeks since then. He's a well known doctor with a great reputation and
I fell as though he can't help me either. I feel, sad for my situation,
for my son, and our future because I know alot relies on him being able
to calm down. I don't think his teacher can handle him and I know as a
parent how hard it is for me trying not to loose my temper when he's
jumping around, displaying inappropriate laughter, or self stiming
(which requires alot of banging or hand slapping). If there any
information you can share with me on diets, or alternative medicine. Do
you have any informaiton on children with Autism who just don't respond
ot medicine because how sensitive there systems are.
Thank you for listening!! Karen
From: WALTER AND MARY ALLEN <email@example.com>
Subject: asperger's and pdd disorder!
Date: 9 April 2001
Our son is in the mental hospital in Northern Indiana as he showing worst toward austism heavy! His doctor stated he needs to be in an controled environment. We've tried every way to control him BUT we have to be in his world to cope.
Life is never the same as the one who changes our life with erratic behavior. Doctors need to listen to us parents because we know them from the top of their heads to their toes! Please write back on your experience and how you deal with this problem. We're frustrated with doctors and teachers. Thank you, Walter and Mary